Facing Health Challenges: A Nurse's Perspective with guest Sandra Mannon

28 May 2025 • 41 min • EN
41 min
00:00
41:09
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In this episode, LeeAnne Hayden speaks with Sandra Mannon about her journey with scleroderma and the decision to undergo an ileostomy. Sandra shares her experiences as a trauma nurse and the challenges she faced after being diagnosed with a rare autoimmune disease. The conversation delves into the complexities of her medical journey, the emotional impact of transitioning to life with an ostomy, and the importance of patient advocacy. Sandra reflects on her past year of healing and adaptation, highlighting the resilience required to navigate her health challenges. In this conversation, the speaker shares her personal journey of overcoming the challenges of living with an ostomy due to scleroderma. She discusses the emotional and physical struggles she faced, including feelings of defeat and despair, and how she found healing through mindfulness practices such as meditation and yoga. The speaker emphasizes the importance of acceptance and positivity in redefining her identity and living life fully despite her condition. She also shares practical tips for managing life with an ostomy and encourages others to embrace their strength and resilience. TakeawaysSandra's journey with scleroderma began after a meningitis infection.She faced multiple health challenges, including bowel obstructions and reflux.The decision for an ileostomy was a significant turning point in her life.Sandra emphasizes the importance of being your own health advocate.Her experience highlights the complexities of managing a rare autoimmune disease.Post-surgery, she encountered unexpected complications, including infections and prolapses.The emotional impact of transitioning to life with an ostomy was profound for her.Sandra's medical background provided her with knowledge but also created challenges in accepting her situation.She learned to navigate her health challenges with resilience and determination.The past year has been a journey of healing and adaptation. I was just exhausted.I wanted to die.I truly, truly believe that I had a healing there.Life is now good.I eat by gravity.I want to live my life.It's just so easy.The mind is so powerful.This ostomy is not the end of our life.Let this show how strong that you are.

From "The Beautiful Bag"

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